Banca de DEFESA: ALVARO MICAEL DUARTE FONSECA
Uma banca de DEFESA de MESTRADO foi cadastrada pelo programa.DISCENTE : ALVARO MICAEL DUARTE FONSECA
DATA : 22/01/2024
HORA: 14:00
LOCAL: Google Meeting - https://meet.google.com/fzz-imcv-zzv
TÍTULO:
PALAVRAS-CHAVES:
Chagas Disease, Grief, Loss, Fear, Illness.
PÁGINAS: 69
GRANDE ÁREA: Ciências da Saúde
ÁREA: Enfermagem
RESUMO:
The Chagas Disease (CD) is a chronic illness in which Chagas subjects suffer from its impacts and repercussions, including physical pain, functional impairments, and compromised well-being. This is evident in manifestations that affect quality of life, daily routines, and autonomy, causing losses and disruptions in the lives of those affected. It strongly impacts the psychosocial sphere, considering the situation of social and economic vulnerability and changes in their identity, way of being in the world, coupled with the perception of oneself as incapable and vulnerable, and the fear of death. Thus, every loss requires the experience of mourning, which is essential for the reconstruction and organization of the individual, their life context, and relationships. In light of this, the research aims to understand the losses and mourning experienced by individuals with Chagas Disease. For this purpose, the method was grounded in the qualitative approach, utilizing a semi-structured interview script. The study took place at the Chagas Disease Outpatient Clinic of the State University of Rio Grande do Norte, involving twelve Chagas subjects, who were analyzed using Bardin's Content Analysis, with the assistance of the IRaMuTeQ software. The study resulted in three categories: "Impact of the diagnosis, symptomatic experience, and repercussions on the individual," "Process of losses and mourning in the life course of the Chagas subject," and "Social and affective support network and its coping mechanisms." The study participants highlighted the inevitable changes, affects, and repercussions in the face of symptoms, routine pains, and the submitted treatment, reverberating and hindering the full performance of daily, work, leisure activities, among others. Despite these individuals understanding the impacts throughout their lives due to Chagas Disease, they often do not associate these impacts with the need to experience mourning. The experience often becomes unrecognizable and/or illegitimate concerning the experience of losses caused by illness. Consequently, it is observed that this directly impacts the provision of support and care from the close circle of individuals and the construction of protective mechanisms. It was concluded that the variations in pains and discomfort faced by this population are not limited to those with symptomatic cardiac or digestive disease. All participants expressed pains, adaptations, and losses in their journey, and it was noted that this population still has little knowledge about their illness process and little awareness of losses and mourning, whether due to social deprivation or self-deprivation. This may contribute as an impediment to the recognition of this unique and healthy psychosocial adjustment process.
MEMBROS DA BANCA:
Interna - 4256 - ELLANY GURGEL COSME DO NASCIMENTO
Externo à Instituição - JOÃO CARLOS ALCHIERI - UFRN
Externa à Instituição - JULITA GOMES MAIA DE SENA
Interno - 12614 - RODRIGO JACOB MOREIRA DE FREITAS